While navigating health information online is crucial, general online safety is equally important for cancer patients and their caregivers. Being vigilant about personal data, privacy, and online interactions can prevent additional stress and potential exploitation during an already challenging time.
Key online safety tips
Protect your personal information
- Be cautious about sharing medical details: While online support groups can be invaluable, be mindful of how much specific medical information you share publicly. Malicious actors can use such details.
- Secure your devices: Use strong, unique passwords for all your online accounts. Enable two-factor authentication whenever possible.
- Be wary of phishing scams: Do not click on suspicious links in emails or messages, even if they appear to be from a legitimate organization. Always verify the sender. Cancer patients are often targets for scams related to “cures” or “financial assistance.”
Engaging with online communities
- Verify group legitimacy: If joining online support groups, check for clear moderation policies and ensure the group is truly supportive and not promoting unproven treatments or preying on vulnerabilities.
- Be discerning about advice: While peer support is beneficial, remember that personal experiences shared online are not medical advice. Always consult your healthcare team before making any changes to your treatment plan based on what you read in online forums.
- Maintain privacy settings: Adjust privacy settings on social media platforms to control who sees your posts and personal information.
Financial Vigilance
- Beware of “miracle cure” sales: Any website or individual aggressively selling unproven cancer treatments or products should be a major red flag. These often come with high prices and no scientific backing.
- Research charities thoroughly: If you’re considering donating to a cancer charity, verify its legitimacy through reputable charity watchdogs before giving any personal or financial information.
- Be skeptical of unsolicited offers: Be cautious of unsolicited calls, emails, or messages offering financial aid, grants, or experimental treatments that seem too good to be true.
Communicate with your healthcare team
- Discuss online findings: If you come across information online that raises questions or concerns, bring it to your doctor or oncology team. They can help you evaluate its validity and relevance to your specific case.
- Ask for recommended resources: Your healthcare provider can often recommend trusted websites, organizations, or patient navigators who can guide you to reliable information.
By combining strong health media literacy with general online safety practices, cancer patients and caregivers can navigate the digital world more confidently, focusing on genuine support and accurate information that truly benefits their health journey.
Murad Karabulut 
CancerDisinfo