{"id":3374,"date":"2026-02-12T15:45:43","date_gmt":"2026-02-12T12:45:43","guid":{"rendered":"https:\/\/cancerdisinfo.org\/?p=3374"},"modified":"2026-02-13T17:25:54","modified_gmt":"2026-02-13T14:25:54","slug":"kanser-hastalari-ve-bakim-verenler-icin-dijital-dayanisma-aglari-etkinliginde-bulustuk","status":"publish","type":"post","link":"https:\/\/cancerdisinfo.org\/tr\/kanser-hastalari-ve-bakim-verenler-icin-dijital-dayanisma-aglari-etkinliginde-bulustuk\/","title":{"rendered":"Kanser hastalar\u0131 ve bak\u0131m verenler i\u00e7in dijital dayan\u0131\u015fma a\u011flar\u0131 etkinli\u011finde bulu\u015ftuk"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">CancerDisinfo toplulu\u011fu olarak 10 \u015eubat\u2019ta \u201c\u00c7evrimi\u00e7i Topluluklar: Kanser Hastalar\u0131 ve Bak\u0131m Verenler \u0130\u00e7in Dijital Dayan\u0131\u015fma A\u011flar\u0131\u201d ba\u015fl\u0131kl\u0131 etkinlikte bulu\u015ftuk. Dr. \u00c7a\u011flayan Akp\u0131narl\u0131\u2019n\u0131n haz\u0131rlad\u0131\u011f\u0131 sunumla ba\u015flayan etkinli\u011fimizde kanser hastalar\u0131, bak\u0131m verenleri ve yak\u0131nlar\u0131 i\u00e7in \u00e7evrimi\u00e7i topluluklar hangi bo\u015fluklar\u0131 dolduruyor ve buralarda nas\u0131l dayan\u0131\u015fma a\u011flar\u0131 kuruluyor sorular\u0131n\u0131 tart\u0131\u015ft\u0131k.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Sa\u011fl\u0131k ileti\u015fimcileri, doktorlar, sa\u011fl\u0131k gazetecileri, akademisyenler, ara\u015ft\u0131rmac\u0131lar, e\u011fitimciler ve konuya ilgi duyanlar ile birlikte k\u0131sa zaman i\u00e7erisinde derin bir tart\u0131\u015fma ger\u00e7ekle\u015ftirdik. Tart\u0131\u015fmam\u0131z\u0131n daha fazla ki\u015fiye ula\u015fmas\u0131 ve gelecekteki etkinliklerimize bir zemin olmas\u0131 i\u00e7in i\u00e7eri\u011fi k\u0131saca \u00f6zetliyoruz.&nbsp;<\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p class=\"wp-block-paragraph\">\u00c7al\u0131\u015fmalar\u0131m\u0131z\u0131 yak\u0131ndan takip etmek, etkinliklerimizden haberdar olmak ve bu \u00fcretim s\u00fcrecinin bir par\u00e7as\u0131 olmak isterseniz sizi topluluk kanal\u0131m\u0131za bekliyoruz: <a href=\"https:\/\/teams.live.com\/l\/community\/FEAsH3ZMr_q1mJTFRc\">https:\/\/teams.live.com\/l\/community\/FEAsH3ZMr_q1mJTFRc<\/a>&nbsp;<\/p>\n<\/blockquote>\n\n\n\n<p class=\"wp-block-paragraph\">\u0130\u015fte, etkinli\u011fimizin \u00f6ne \u00e7\u0131kan ba\u015fl\u0131klar\u0131:&nbsp;<\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>\u00c7evrimi\u00e7i topluluklar\u0131n kurucu ve g\u00fc\u00e7l\u00fc zeminlerinden birisi kanser hastalar\u0131n\u0131n bilgi bo\u015fluklar\u0131<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Kanser hastalar\u0131n\u0131n \u015f\u00fcphe, tan\u0131, tedavi ve tedavi sonras\u0131 s\u00fcre\u00e7lerde ihtiya\u00e7 duydu\u011fu bilgiye ula\u015fmas\u0131n\u0131n en g\u00fc\u00e7l\u00fc zeminlerinden birisi \u00e7evrimi\u00e7i topluluklar. Hastalar, bak\u0131m verenler ve yak\u0131nlar\u0131 k\u0131sa doktor g\u00f6r\u00fc\u015fmelerinde soramad\u0131klar\u0131 bir\u00e7ok soruyu hastal\u0131\u011f\u0131 \u00f6nceden ge\u00e7irmi\u015f veya tedavisi devam eden ki\u015filere soruyor. Kendi hastal\u0131k s\u00fcre\u00e7lerine dair bir \u00f6ng\u00f6r\u00fc geli\u015ftirmek, hastal\u0131k s\u00fcrecinde ihtiya\u00e7 duydu\u011fu basit g\u00f6z\u00fckebilen bilgileri edinebilmek ve yaln\u0131z olmad\u0131\u011f\u0131n\u0131 hissetmek istiyor. Akp\u0131narl\u0131, bu ihtiyac\u0131 \u015f\u00f6yle tan\u0131m\u0131yor: \u201cMuayenede s\u0131ra gelmeyen sorular\u201d.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Kanser hastalar\u0131 yaln\u0131z olmad\u0131\u011f\u0131n\u0131 bilmek ve duygular\u0131n\u0131 payla\u015fmak i\u00e7in \u00e7evrimi\u00e7i topluluklarda bulu\u015fuyor<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u00c7evrimi\u00e7i topluluklar kanser hastalar\u0131n\u0131n sadece bilgi edindi\u011fi yerler de\u011fil ayn\u0131 zamanda yaln\u0131z olmad\u0131klar\u0131n\u0131 hissettikleri b\u00fcy\u00fck bir sosyal alan. Geli\u015ftirmi\u015f olduklar\u0131 ili\u015fkilerde yaln\u0131zl\u0131k duygular\u0131n\u0131 k\u0131r\u0131yor, farkl\u0131 hikayelerden ilham al\u0131yor ve tedavi s\u00fcre\u00e7lerine dair motivasyonlar\u0131n\u0131 g\u00fc\u00e7lendiriyorlar.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Do\u011fru bilgi payla\u015f\u0131m\u0131 y\u00fck\u00fc hafifletirken yanl\u0131\u015f bilgiler hastalar\u0131n kayg\u0131lar\u0131n\u0131 art\u0131r\u0131yor&nbsp;<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Toplulu\u011fun birle\u015ftirici g\u00fcc\u00fcn\u00fcn yan\u0131nda, toplulukta payla\u015f\u0131lan bilgilerin do\u011fru olup olmad\u0131\u011f\u0131n\u0131 denetlemek elzem. Payla\u015f\u0131lan her i\u00e7erik topluluktaki ki\u015filer taraf\u0131ndan ayn\u0131 zamanda bir denetime de tutuluyor. \u00c7\u00fcnk\u00fc yanl\u0131\u015f bilgiler hem hastalar\u0131n kayg\u0131 seviyesi art\u0131r\u0131yor hem de onlar\u0131 yanl\u0131\u015fa y\u00f6nlendirebiliyor. Ortak ak\u0131lla denetlenen bu i\u00e7eriklerdeki bilgiler ele\u015ftiriye ve sorgulanmaya her zaman a\u00e7\u0131k. G\u00fcvenilir kaynaklara dayand\u0131r\u0131lan do\u011fru bilgilerin payla\u015f\u0131lmas\u0131, gerekirse bilimsel makalelerden at\u0131f yap\u0131lmas\u0131 ve hastalar\u0131n kullanabilecekleri bilgilerin anlayabilecekleri \u015fekilde anlat\u0131lmas\u0131 hastalar\u0131n ihtiya\u00e7lar\u0131n\u0131n kar\u015f\u0131lanmas\u0131 i\u00e7in \u00e7ok \u00f6nemli.&nbsp;&nbsp;<\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>\u0130la\u00e7 davalar\u0131ndan kullan\u0131lmayan yatak payla\u015f\u0131mlar\u0131na kadar sa\u011fl\u0131k hizmetlerine eri\u015fimde e\u015fitsizli\u011fi hafifletecek dayan\u0131\u015fma pratikleri \u00f6rg\u00fctleniyor<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Hastalar \u00e7evrimi\u00e7i topluluklarda sa\u011fl\u0131k hizmetlerine eri\u015fimde ya\u015fad\u0131\u011f\u0131 e\u015fitsizlikleri hafifletecek ve kanser y\u00fck\u00fcn\u00fc payla\u015facak dayan\u0131\u015fma stratejileri \u00f6rg\u00fctl\u00fcyorlar. Hastalar\u0131n cebinden kar\u015f\u0131lad\u0131\u011f\u0131 ve \u00f6denmeyen ila\u00e7 paralar\u0131ndan kullan\u0131lmayan yataklar\u0131n di\u011fer hastalarla ve ihtiyac\u0131 olanlarla payla\u015f\u0131lmas\u0131 gibi tedavi s\u00fcrecindeki ihtiya\u00e7lar\u0131n tamam\u0131na cevap verebilecek \u015fekilde dayan\u0131\u015fma \u00f6rg\u00fctleniyor. Hastal\u0131k s\u00fcrecini ya\u015fayan ve tedavisi bitmi\u015f ki\u015filer maddi, manevi, entelekt\u00fcel birikimlerini di\u011ferleriyle payla\u015f\u0131yor.&nbsp;<\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>E\u011fitim seviyesi d\u00fc\u015f\u00fck olan fakat hastal\u0131k s\u00fcrecinin e\u011fitti\u011fi ki\u015filer topluluklara liderlik yapabiliyor<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Hastal\u0131k s\u00fcrecini atlatm\u0131\u015f, bu s\u00fcre\u00e7te bilgilenmi\u015f, bir\u00e7ok hastan\u0131n s\u00fcrecine tan\u0131k olmu\u015f ve toplulukta uzun s\u00fcredir bulunan ki\u015filer topluluklar\u0131n do\u011fal liderleri konumunda. \u00c7evrimi\u00e7i s\u00fcreleri, cevap verdikleri sorular\u0131n say\u0131s\u0131, y\u00f6nlendirme ve sorun \u00e7\u00f6zebilme yetenekleri ile toplulu\u011fun do\u011fal liderli\u011fini ve \u00e7o\u011fu durumda y\u00f6netimini \u00fcstleniyorlar.&nbsp;<\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Topluluklar\u0131n bir \u201cpazar\u201d kanser hastalar\u0131n\u0131n da \u201cm\u00fc\u015fteri\u201d olarak g\u00f6r\u00fclmesi topluluk liderleri ve dinami\u011fi taraf\u0131ndan engelleniyor<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Kanser hastal\u0131\u011f\u0131n\u0131n \u201cb\u00fcy\u00fck bir pazar\u201d olarak g\u00f6r\u00fclmesi \u00e7evrimi\u00e7i topluluklara y\u00f6nelik i\u015ftah\u0131 da art\u0131r\u0131yor. Etkisi kan\u0131tlanmam\u0131\u015f do\u011fal oldu\u011fu iddia edilen \u00fcr\u00fcnlerin sat\u0131\u015f\u0131n\u0131 yapmak, buradaki sosyalli\u011fi bir pazara \u00e7evirmek isteyen k\u00f6t\u00fc niyetli ki\u015filer do\u011fal liderler ve toplulu\u011fun dinami\u011fi taraf\u0131ndan fark ediliyor. Kulland\u0131klar\u0131 dil, hastalara yakla\u015f\u0131m tarzlar\u0131 ve aceleci tav\u0131rlar\u0131 dikkat \u00e7eken bu ki\u015filer topluluktan at\u0131l\u0131yor. Hem topluluk y\u00f6neticileri hem \u00fcyeler i\u00e7in grup i\u00e7erisine farkl\u0131 yollarla dahil olmaya \u00e7al\u0131\u015fan k\u00f6t\u00fc niyetli ki\u015filere kar\u015f\u0131 fark\u0131ndal\u0131k geli\u015ftirmek olduk\u00e7a \u00f6nemli. Bu ki\u015filere m\u00fcdahale etmek tek ba\u015f\u0131na yetmiyor; ki\u015fisel veri payla\u015f\u0131m\u0131, \u00fcr\u00fcn sat\u0131\u015f\u0131, yanl\u0131\u015f bilgilerin yay\u0131lmas\u0131 gibi tehlikelere kar\u015f\u0131 temkinli davranmalar\u0131 da her zaman \u00f6nem ta\u015f\u0131yor.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Sa\u011fl\u0131k ileti\u015fiminde \u00e7evrimi\u00e7i topluluklar\u0131n g\u00fcc\u00fc<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u00c7evrimi\u00e7i topluluklar sa\u011fl\u0131k hizmetlerinde hiyerar\u015fiyi k\u0131rmak ve e\u015fit ili\u015fki zemini yaratmak i\u00e7in \u00f6nemli bir zemin. \u00d6zellikle hastalar\u0131n bilgi aray\u0131\u015flar\u0131na cevap veren, onlar\u0131n dertlerini payla\u015fan, kanser y\u00fck\u00fcn\u00fc hafifleten ve hastalar\u0131 bir say\u0131 olmaktan kurtaran bir dayan\u0131\u015fma prati\u011fi \u00f6rg\u00fctl\u00fcyorlar. Sa\u011fl\u0131k hizmetlerine e\u015fit eri\u015fimin olmad\u0131\u011f\u0131 ve b\u00fcy\u00fck u\u00e7urumlar\u0131n bulundu\u011fu toplumsal yap\u0131larda hastalar i\u00e7in ya\u015famsal \u00f6neme sahip bu kurucu zeminlerin \u00e7o\u011falmas\u0131 gerekiyor.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">* \u00c7a\u011flayan Akp\u0131narl\u0131, yurtd\u0131\u015f\u0131nda ve yurti\u00e7inde sivil toplum projelerinde yer alm\u0131\u015ft\u0131r. Yerel ve global markalar\u0131n ileti\u015fim ve pazarlama projelerinin tasarlanmas\u0131nda; akademik ve idari pozisyonlarda \u00e7al\u0131\u015fm\u0131\u015ft\u0131r. Galatasaray \u00dcniversitesi\u2019nde 2023 y\u0131l\u0131nda tamamlad\u0131\u011f\u0131 <a href=\"https:\/\/drive.google.com\/drive\/folders\/1DkYKclkeBfQOHpbQj1EgCuhEwcT857Fz?usp=sharing\">\u201cTopluluk Temelli Anlat\u0131sal T\u0131p: Facebook gruplar\u0131nda kanser hastalar\u0131n\u0131n hikayelerini dinlemek\u201d <\/a>ba\u015fl\u0131kl\u0131 doktora \u00e7al\u0131\u015fmas\u0131nda topluluk temelli anlat\u0131lar\u0131n sa\u011fl\u0131k ileti\u015fimini iyile\u015ftirme s\u00fcre\u00e7lerindeki rol\u00fcn\u00fc incelemi\u015ftir. Akademik ilgi alanlar\u0131 aras\u0131nda sa\u011fl\u0131k ileti\u015fimi, anlat\u0131sal t\u0131p, topluluk \u00e7al\u0131\u015fmalar\u0131 ve sosyal etki de\u011ferlendirmesi bulunmaktad\u0131r.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u00c7evrimi\u00e7i topluluklar, kanser hastalar\u0131 i\u00e7in sadece bilgi kayna\u011f\u0131 de\u011fil, &#8216;muayenede s\u0131ra gelmeyen sorular\u0131n&#8217; yan\u0131tland\u0131\u011f\u0131 bir dayan\u0131\u015fma alan\u0131d\u0131r. Bu dijital a\u011flar; bilgi bo\u015fluklar\u0131n\u0131 doldurarak, yaln\u0131zl\u0131k hissini k\u0131rarak ve dezenformasyona kar\u015f\u0131 ortak ak\u0131l y\u00fcr\u00fcterek sa\u011fl\u0131k hizmetlerindeki hiyerar\u015fiyi hastalar lehine d\u00f6n\u00fc\u015ft\u00fcr\u00fcyor.<\/p>\n","protected":false},"author":267049207,"featured_media":3385,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_wpcom_ai_launchpad_first_post":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[581578561],"tags":[581578707,581578708,581578644],"class_list":["post-3374","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-ekip-gunlugu","tag-cevrimicitopluluklar","tag-dijitaldayanismaaglari","tag-kanser-2"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v28.2 (Yoast SEO v28.6) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Kanser hastalar\u0131 ve bak\u0131m verenler i\u00e7in dijital dayan\u0131\u015fma a\u011flar\u0131 etkinli\u011finde bulu\u015ftuk - CancerDisinfo<\/title>\n<meta name=\"description\" content=\"CancerDisinfo toplulu\u011funun d\u00fczenledi\u011fi &quot;\u00c7evrimi\u00e7i Topluluklar&quot; etkinli\u011finde, kanser hastalar\u0131 ve bak\u0131m verenler i\u00e7in dijital dayan\u0131\u015fma a\u011flar\u0131n\u0131n \u00f6nemi tart\u0131\u015f\u0131ld\u0131. Bilgi kirlili\u011fiyle m\u00fccadele, sa\u011fl\u0131kta f\u0131rsat e\u015fitli\u011fi ve topluluk liderli\u011fi gibi \u00f6ne \u00e7\u0131kan ba\u015fl\u0131klar\u0131 ke\u015ffedin.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/cancerdisinfo.org\/tr\/kanser-hastalari-ve-bakim-verenler-icin-dijital-dayanisma-aglari-etkinliginde-bulustuk\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Kanser hastalar\u0131 ve bak\u0131m verenler i\u00e7in dijital dayan\u0131\u015fma a\u011flar\u0131 etkinli\u011finde bulu\u015ftuk\" \/>\n<meta property=\"og:description\" content=\"CancerDisinfo toplulu\u011funun d\u00fczenledi\u011fi &quot;\u00c7evrimi\u00e7i Topluluklar&quot; etkinli\u011finde, kanser hastalar\u0131 ve bak\u0131m verenler i\u00e7in dijital dayan\u0131\u015fma a\u011flar\u0131n\u0131n \u00f6nemi tart\u0131\u015f\u0131ld\u0131. 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